r/interesting • u/Fast-Improvement7832 • Jul 25 '26

MISC. My fingers are way too long

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u/sayitsooth Jul 25 '26

I just tried it. I can touch my thumbs to my forearms and do the spine one, I can actually hug my legs. Everything else seems normal ish.

Wild stuff.

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u/External-Praline-451 Jul 25 '26

Yeah it's weird when it all seems normal! I'm also hypermobile, but fall just short by a point or so on the EDS score sheet. My Rheumatologist called it "Benign Hypermobility" but it doesn't necessarily mean you don't get problems with it, just that it's not as serious as EDS. I think it's gradually been replaced by "Hypermobility Spectrum Disorder" as they now acknowledge it can cause quite a lot of issues and pain in some people, even if theyre not diagnosed with EDS.

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u/sayitsooth Jul 25 '26

That's interesting because I have spinal issues. I have always been super flexible and I bruise very badly very easily.

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u/External-Praline-451 Jul 25 '26

Same, I've got cervical spinal stenosis too. I'm a grey area for surgery at the moment.

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u/sayitsooth Jul 25 '26

I'm in consultation but I have some rather serious concerns about choosing this option with a full spinal assessment, doing an ACDF is whoa!

I'm sorry, I am sure we both know how much this situation sucks.

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u/External-Praline-451 Jul 25 '26

I'm sorry for you too, it does suck. I agree about ACDF, I'm not keen, and apparently it can cause problems in other areas. I'd rather avoid unless really necessary!

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u/TransMascCatBoye Jul 25 '26

Might be worth looking into EDS if you haven't before and seeing if anything else lines up for you. Just keep in mind if you're amab or on testosterone hrt, some things like skin texture/elasticity and higher baseline muscle mass (adding some extra stabilization to joints) can make your problems less obvious. Its thought that a lot more men have EDS than is diagnosed because of that + men being more resistant of going to a doctor to begin with.

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u/Unfinishedsente--- Jul 25 '26

Hmm can you elaborate more?

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u/sayitsooth Jul 25 '26

Stenosis, bulging disc, severe foraminal narrowing, specifically the C5 for sure. Requisite symptoms. I did however do a lot of physical labour.

Symptoms in the lumbar region that point to similar. No MRI where I live, I would have to fly.

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u/eskimo_scrotum Jul 26 '26

Your rheumatologist sounds honest and open-minded. My wife clearly has EDS but the rheumatologist she saw did not want to call it that simply because the skin on the back of her hands can’t be pulled up a ridiculous amount. He said lots of other stuff lined up, but he treated her like she was some drug-seeker. Like omg no we just want answers, and an appropriate dx to work with. Ugh

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u/Enlightened_Gardener Jul 26 '26

You can be hypermobile in different places, as well. I have a kid with full-blown EDS, and I’m hypermobile in my bottom half - subluxing sacrum, I can easily do the splits, put my hands flat on the ground with locked knees etc etc. But I don’t have any of the thumb/shoulder/wrist stuff

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u/sayitsooth Jul 26 '26

Before the arthritis I could do the splits both ways with extras. I did a lot of sports that would have encouraged me to develop flexibility as a kid, good at a lot of stuff.