Hi,
I’m 20 years old, female.
I’ve been having this problem since I was about 6, I’ve been to ENT specialists, primary care, rheumatology and had no luck anywhere. everywhere i look online doesn’t have anything matching what i’ve experienced and it’s seriously affecting my quality of life.
Essentially I get strep throat symptoms (i have been tested many times, never positive): unable to swallow, profuse vomiting, muscle pain, confusion. Never a fever. There’s also a specific duration: I start feeling sick in the evening of day 1, I’m unable to eat drink, swallow and constantly vomiting whenever I sit up or move for most/all of day 2 and then day 3 all symptoms are gone except feeling overall weak.
This happens multiple times a year, with only one year (2020-2021, when everyone was wearing masks) where i didn’t get sick at all. When I was 17 there were three weeks in a row that every friday the symptoms would come on. I went to urgent care, they tested me for strep and it was negative but still gave antibiotics, after which it didn’t come back for months. this happened again when I was 18 and same thing with the antibiotics.
Oral steroids (liquid, no idea what exactly) have helped me be able to swallow faster once when i was 11 and once at 18. But last year they had no effect at all. However the urgent care i got them from was insanely sketchy so that might have more to do with it than the steroids themselves.
I very rarely get sick in any other way, no colds, only had the flu once, and almost no fevers in my life. There doesn’t seem to be a hard-and-fast pattern with timing of getting sick either. Definitely more common in fall-winter but there’s been plenty of times i’ve been sick in the spring or summer. I notice it happens mostly when someone i’m in close contact with is sick, but they’ve never had the same symptoms and no one who’s been close to me while i’m sick has developed anything. I’ve also been told (not by any medical professional) it could be stress related, but again this happens at all times and when i’m in all moods/ situations.
I have a history of thyroid issues (i was diagnosed with hashimotos at 15, but “undiagnosed” (?) at 17 and told my antibody levels were borderline, and my mother has hashimotos disease. A few members of my family have celiac but that doesn’t seem relevant to this.
My nutrition has never been good and is especially deficient in vitamin c. however over the 14 years since i started getting sick my diet has varied widely and it never seems to have impacted this.
I do have mental health concerns: autism, adhd, ocd, bipolar and ptsd. I don’t know if this has anything to do since the onset of most symptoms is most pronounced after when I started experiencing these symptoms. I was going through trauma when I first got sick like this, but again no idea if it’s relevant.
I also don’t think my medications are relevant for same reason as above but I started taking adderall and lamotrigine at 15 and in the two years i’ve started taking spironolactone and guanfacine.
When I was 3 I was hospitalized for not being able to breathe. It resolved with steroids, but there was never a cause found. no idea if this is related i’m just grasping at anything.
As a toddler/baby i also had recurrent ear infections again no idea if this is relevant but providing as much info as i can.
Any possibility, literally ANYTHING is helpful. I’m currently sick again during midterms (I’m a STEM major so it’s pretty bad lol, this also happened last ) and I’m so tired of having no idea what to do. This is so painful and if there’s any way to at least get an answer that’s all i’d want