r/BinocularVision • u/Remote_Force1839 • 6d ago

PPPD

So do a lot folks in here also have PPPD? These two conditions seem to go hand in hand, but not sure which causes which.

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u/KitKatKalamazoo 6d ago

I have both. Started with BVD as I felt my eyes were having the most issues at the time. My specialist advised me to get vestibular testing as I was still dealing with my symptoms even after prisms and vision therapy. Was diagnosed with PPPD and a few other vestibular disorders and started therapy for that.

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u/Remote_Force1839 6d ago

I think I’m going to pursue vision therapy next. Prisms aren’t doing anything

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u/KitKatKalamazoo 6d ago

Did you get a few prescription changes at least? It sometimes takes a couple tries before they can start feeling better.

I chose the wrong vision therapy provider so that was a waste of money and time. Just make sure that whoever you choose is doing progress reports over a period of time so that you can both see how your therapy needs to be fine-tuned on whatever direction is needed.

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u/Remote_Force1839 6d ago

Yes, I’ve had two. This one I’ve had since the end if august. That should be enough time, right? The thing is, the eye place is 90 miles away so I want to use a place closer to my home for the therapy and I don’t know if the eye dr will let me.

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u/KitKatKalamazoo 5d ago

Usually that's enough time. Most doctors say to wear it for at least 4 weeks before coming in for a reassessment.

Oooh yeah that's pretty far, especially for in-office therapy. Best bet is to find a closer provider and then run it by the eye doc to see if their way of doing therapy lines up.

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u/Caleb6118 6d ago

How did you get vestibular testing done exactly?

What specialist did you go to exactly for it?

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u/KitKatKalamazoo 6d ago

I googled vestibular specialists near me and a balance and ear institute popped up close by. I called them to talk about my symptoms and what I've done so far then made an appointment. I was seen by a doctor of Audiology and had 4 hours worth of testing done to figure out what my issues were.

Prior to this, I saw a physiotherapist at a physical therapy place but they only wanted to work on my balance. That wasn't my main concern so when I found the balance and ear institute, I made sure they worked on vestibular disorders and could help with the symptoms I was having, mainly dizziness and nausea/motion sickness, among a couple other things.

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u/Remote_Force1839 5d ago

Do you feel better now? If so, what would you say helped the most?

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u/KitKatKalamazoo 5d ago

Yeah, I definitely feel better now. The first 2 months of therapy were rough because your body is trying to acclimate to everything that is happening to it. But after that, I noticed my symptoms were starting to lessen and I was slowly feeling better. The only time my symptoms come back are because of a flare up, but that's mostly from a couple chronic medical conditions that I'm dealing with alongside this.

I've only done in-office therapy so that's the only thing I can say helped the most. I also do home exercises that were given to me to do between appointments.

Trying to live my life like normal was another habit that I think also helped. My symptoms were always bad and if I allowed it, I would have been couch or bed-bound for days, weeks, or months. Instead, I made sure I went out to do errands, go to the gym, cook dinner, and just do things on a smaller scale than what I was used to. I think that helped my body realize it was ok to not feel too great but still be able to function how I needed.

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u/Former-Sea-1599 5d ago

Yep they do indeed go hand in hand. I am in vision therapy and have prisms. I find acupuncture really helpful too.

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u/Remote_Force1839 5d ago

Do you find the vision therapy helpful? Is it very similar to vestibular therapy? I’m assuming the both use similar things like eye tracking but maybe not 

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u/Former-Sea-1599 3d ago

Vision therapy helps strengthen how our eyes focus, track objects, and work together as a team, while vestibular therapy focuses on the connection between the inner ear, brain, and eye movements to support balance and spatial orientation. I found vestibular therapy helpful when my dizziness was bad, particularly with feeling more aware of my surroundings and more steady and oriented in my body. Vision therapy has helped reduce my dizziness and made my eyes feel less jumpy.